Comments on: About The Spongiotic Dermatitis – A Skin Disease

By: Shirley

Shirley — Thu, 08 Sep 2011 19:47:24 +0000

Abigail what is the name of the cream? My break outs are spreading very fast. Not sure how much longer I can live with this, Everything seems to burn my skin, sun, water , sweat, flouresent light, soft white light, even the light from tv and computer. I can’t find a doctor who has ever seen this, they told me they can’t do anymore for me after 3 rounds of steroids

By: mzsweety

mzsweety — Wed, 23 Feb 2011 04:49:36 +0000

my daugther has spongiotic dermatitis to the scalp she loosing most of her hair.the doc gave her triamcinolone cream will that help?

By: Abigail

Abigail — Thu, 25 Nov 2010 21:56:49 +0000

Hi Ann,
I have good news for you & husband.
im 55 yrs i have sufferd with dermatitis since age 24 tryed everying.
Doctors have been treating me with prenisalone seriod wich is making me sicker all though clear the rash, it will return after stoping medication. and worse.
I had a punch biopsy wich cofirmed cronic spngiotic deratitis. again was refered to an allerge specialist & skin specialist WRONG peopel to see.
My freind has the same disease and has seen a Dermatology Dr Hannes Gebauer in Fremantle w.a PH: {08}94306241
sponiotic dematitis is when the link are missing that jion the skin together wich leave you skin open to every thing. steroids are the one thing not to take.Dr hannes gave my friend a creem to aply all over ones a day 4/2wks 4/days it has gone & never returned.Im haveing a patch test to have same treatment He promist i will be healed. its realy simple. we are born with fulty skin. water heat soap sun aviod for now sponge wosh only. water is the worset

By: Gina

Gina — Fri, 10 Sep 2010 20:23:32 +0000

This is so helpful. Thanks Jucole. I have been taking my child to my pediatrician for almost a year with the same diagnosis. I will be doing more research which by the way this is suppposed to be done by the pediatrician. I cant imaging why a so called “doctor” was not able to diagnose him. Jucole, I bet you are not taking your child to the same pediatrician, right?
Anyway once again thank you I will try my best to follow your advice and maybe pay a visit to Dr Rapport ( too bad he lives in CA)

Gina.

By: Pam

Pam — Fri, 03 Sep 2010 16:11:21 +0000

The aterax tablets is commonly used to treat many forms of herpes, and shingles.

By: Jucole

Jucole — Wed, 21 Jul 2010 17:27:29 +0000

My son’s seborrheic dermatitis which he had at about 1 month old turned into spongiotic dermatitis from excessive topical steroid use. His idiotic doctor thought that he just had classic eczema but with seborrheic dermatitis, steroids can result in dependency. We found out like 4 mos after continous use all over from neck down what was in the compound when we couldn’t withdrawal him from it. We have found a doctor in CA by the name of Dr. Marvin J. Rapport who has been really helpful. Every other doctor we’ve seen kept telling us to continue the steroids & that he was probably allergic to something. We tapered our son for 6 months noticing all kinds of side effects from the steroids. His eye lids were even swelling & inflaming from the topical steroids. Its been 2 months since we withdrew him & his eye lids haven’t swelled once since we withdrew. His flare-ups keep coming though. He’ll get a couple of days break here and there but we haven’t seen a great improvement yet. This rash has even spread into his scalp. I think it’s very painful & itchy, but he’s had it almost his whole life so I guess thats why he can tolerate it a little bit. Anyways we currently give him oatmeal baths every night along w/ benadryl before bedtime & moisturize his entire body with vaseline 4-5 times a day.
My second son had the same rash at 2-4 weeks of age & we simply used vaseline, kept him in loose clothing, & in a cool environment & his rash disappeared by time he was 5-6 months old.
Dr. Rapaport thinks it will take 6-12 months for the side effects to go away.

Hope this helps sincerely,
Jucole

By: jeremy hozjan

jeremy hozjan — Mon, 29 Mar 2010 00:58:25 +0000

oatmeal baths i have it bad i am new to it but i found oatmeal baths seems to help the itch very effectivly try and let me know waht you think my email is hozjanjeremy@yahoo.com.

By: Ann Guglielmi

Ann Guglielmi — Mon, 25 Jan 2010 13:37:15 +0000

My husband is currently diagnosed with spongiotic dermatits, he has it quite bad and
all over his body, he was prescribed with Aterax tablet and Dovate Cream, it does not
really help, is there any other solution for this allergy?